Sunday, March 4, 2012

Zoe's Shunt Surgery #1

    We are hopefully approaching Zoe's last week in the hospital. We have been told that her shunt will be internalized again Thursday or Friday and then a few days after that, be home again. I am praying with all of my heart, mind, and soul that we will not have to come back and stay here for a very long time! Even though Zoe's stay at Children's has been made easier by the wonderful nurses and PCAs, it has been a long 3 weeks, and to be honest, I am craving some sort of normalcy at home with BOTH of my girls. I was supposed to go back to work next week, but that will not happen. So, we are still in a holding pattern until the next surgery and that's where the story of Zoe's journey picks up......

Thursday, January 12th was a crazy and blessed day. After pretty exhausting night, physically and emotionally, we settled down to try to get as much sleep as we could in a hospital setting. We were told Wednesday night that we could expect a phone call around 6am to let us know when Zoe would be taken for shunt surgery. OSU would release me to leave on a day pass and we needed to know a general time from Children's in order to time out everything well for me to leave...this included pain medication for me while I was gone. The nurses could not give me anything to take with me, so my only pain meds would be administered as I was leaving the hospital. On a side note, I have been very blessed with good recoveries from both of my csections. In fact, my friend Dee told me I was her "C Section Hero" after I had Emma because I only used a few doses of Tylenol 3 when I came home from the hospital. I'm not implying that friend Dee is a wimp or likes prescription drugs (ha ha), but the more I talk to people who have had C Sections, the more I realize that God gave me grace with them, especially with Zoe's.  Anyway, 6:00 am came and went with no phone call, so Troy and I began to pray and after a half an hour I started calling Children's hospital to see if anyone knew anything and of course the answer was "No". Around 7:30 am I finally got a call from the Neurology nurse that they were taking Zoe at that very moment for pre-op......WHAT? To say that we were a bit frustrated was an understatement, but we know that this is the way it goes in a hospital. My nurse at OSU literally put the pills in my mouth and put in the wheelchair and Troy ran to the parking garage to get the car for me. I don't want to scare anyone, but the prospect of not seeing Zoe before her surgery was enough to turn my mild mannered, careful driving husband into the newest addition to the Nascar Circuit! We made it to Children's in record time and in one piece....thank the Lord!
Our Pastor, Michael Bullock, was already there and in my opinion, stalled the process of them taking her to surgery until we got there. I had felt bad all morning that Pastor had gotten to the hospital so early and had to wait, but I now can look back and say that God had already known that this all was going to happen, and made the provision of our Pastor for Zoe. He talked to her, prayed over her, and loved on her until we got there and for that, we will be eternally grateful. We love and respect him so much and we were so grateful for his support that day and many days since!
    We got to pray over her and kiss her a lot before they took her off to surgery and then came the waiting. Our family member came up to wait with us, support us, and pray with us. I was physically feeling pretty good considering I had major surgery less than 48 hours before.....emotionally, I had to yield to God and relinquish control. A little over an hour later, Dr. Grondin came out and told us that everything went well and that he only had to put in one shunt (not three) and believed that the brain tissue was compressed...not missing! We began rejoicing and praising God! The first step in Zoe's journey was over and now she needed to recover. We tried not to think of the next steps, even though it was hard.  Zoe finally got settled and comfy in the NICU with lots of good nurses taking care of her. We went up and spent a little time with her and Emma loved getting to see her sister again. She gave her lots of kisses. I was starting to feel the hurt some and was extremely exhausted so we knew it was time to go back to the hospital. We decided to have Emma stay with us at OSU. I think she was missing us and I was missing her. I am so thankful for the nice hospital room that we had during our stay. When we got back, the nurses informed us that I was only supposed to be gone 4 hours and I had been gone 8....oops! No one had told us that piece of information. No one got into trouble and we all had a good laugh and thanked God for the grace He gave me physically to get through this day. Emma, Daddy, and I slept very well that night. I was getting released the next day and then we were going to the Ronald McDonald house for the weekend. Below is the link to a song that touched my heart during my hospital stay and my time at Children's holding my daughter and loving on her....asking God to bless her, heal her, and give me what I needed now and when I took her home. I have sung it to her a lot since her birth.
The words are so beautiful and I hope it blesses you
My Beloved by Kari Jobe

Here are some pics of the waiting room and Zoe in her head wrap



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